Factor V Leiden

I have Factor V Leiden (FVL) and I want to make a difference to someone else’s life so they don’t go through the trauma I’ve been through.

FVL mutation is an inherited disorder which simply indicates one’s blood is thicker than the average person’s and is susceptible to blood clotting.

Those who have the FVL gene are at high risk for clots that form in veins in the legs (deep vein thrombosis – DVT) or clots that travel through the bloodstream, to the heart, and then the lungs (pulmonary embolism – PE) or the brain (stroke).

FVL is so common, it’s suspected that one out of every 20 Caucasian people has it but it can disrupt life incredulously. People with FVL are urged to not take hormone pills (contraception) and when flying should inject themselves with instant blood thinning agents like Clexane or similar; pregnancy is higher risk but treatable and manageable, and water intake and exercise is crucial to keeping blood flow healthy.

To join my online community, please visit my Facebook group page and tell us your story. It’s a small group at the moment but hopefully numbers will increase with your help.

Here are a couple blogs I’ve posted on my experience with FVL:

A Second Chance at Life

A Panic State of Mind

Obsessive or Just Being Careful?

Sick of the Scare Mongering

Below is also a list of some websites you may find useful when researching FVL. If you have any questions or concerns, always speak to a specialist. Get in touch with me if you’re not sure about something and are looking for some personal advice. There is a lack of Australian informative websites so it’s the best I can find.

Living with Thrombophilia
Dr Chris Barnes
Mayo Clinic
Stop the Clot


  1. Hi – I just came across your blog and interestingly have also just been diagnosed as having the Factor V Leiden gene mutation. I have had too pregnancies before knowing I had Factor V and so far no problems but knowing that I have it has made me very conscious of eating well and staying healthy. Good to find someone else who knows they have it.

    • Sorry found your blog via Mumchic – completely unrelated to Factor V Leiden 🙂

    • Kate Dzienis says:

      Thanks for reading hon. It’s always great to find more and more people who have FVL (not great as in they have it, but great to finally see the condition being more recognised so that people are aware of their health needs). It’s slowly showing that yes indeed, 1 out of every 20 women has some form of symptom (men are less likely to show and have symptoms, they’re more a carrier). Great to finally hear a good news story in that you’ve had two children and haven’t had any issues – so well done! Continue the healthy lifestyle and stay active, it’s so important. When did you find out you had FVL?

  2. Your blog is great. I hope people on my blog will go to yours so we can create a network in the community. It’s awesome that you take the time to blog about FVL Are there any other blogs you recommend I should link off to?
    Thanks again for visiting my blog 🙂

    • Kate Dzienis says:

      Thanks so much hon, it’s wonderful to connect with others who understand the complexities and intricacies of our condition and I only hope we can continue to raise awareness of such important health issues which can ultimately affect someone’s life. You’ve done a wonderful job with your blog site, let’s please stay in touch xxx

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